"A terrible disorder which doesn’t have to end in tragedy"

Our son Luke lived his life afflicted with this terrible condition.

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What is MSK

Medullary sponge kidney (also known as Cacchi–Ricci disease) is a congenital disorder of the kidneys characterized by cystic dilatation of the collecting tubules in one or both kidneys.

Medullary sponge kidney as seen on an intravenous pyelogram

Luke’s Story

For the first 16 years of Lukes’ life, there was no indication that he was anything but a healthy, happy, gifted young man.

But, at 16, his first kidney stone was the beginning of a 16 year struggle for a normal life.

Pam’s Story

This section is currently being updated.

Dave’s Story

This section is currently being updated.

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In Rememberance of Luke Seavey

In Remembrance Luke Alan Seavey October 15, 1980 – February 26, 2013 Seavey, Luke...